The blog

Practical guidance, education, and real stories from the cleft and craniofacial community—designed to support families, caregivers, and care teams in everyday life.

Explore recent articles, personal experiences, and helpful resources.


What We Wish We Had Known From Day One About Cleft Care
Anna Barigayomwe Anna Barigayomwe

What We Wish We Had Known From Day One About Cleft Care

When a child is born with a cleft or craniofacial difference, families often assume surgery will be the hardest part. What I came to understand—by listening to my parents reflect on their journey and through years of working alongside families—is that the real challenge is navigating care over time and knowing who should be guiding it. This post shares pearls of wisdom on finding the right surgeon, the right team.

Read More
Never miss a post. Click to sign up for our emails